A HISTORY OF MY DECUBITUS

A HISTORY OF MY DECUBITUS My problem has been long standing. First of all I can't FEEL!. I figure I must have had some sort of injury to the site (the right sit bone--the Ischim). My right side is a bit more paralyzed than the left. My original fall was in 1981 and I don't remember any problem before my bladder removal in 1992 when I had a sore on my tail bone but I don't remember anything being on my Ischim. I know I had various cushions including gel types and low profile rohos. I do remember one gel cushion going weird and it never relaxed at one point, so that my have been one cause of the sore? in any case, check out my blog: I remember when I moved to Anaheim in 1993 I was dealing with an Ischim sore, but being a Kaiser patient who had zero understanding of (or interest in helping?) spinal cord injured people--as far as I know, nor did I (even tho I had seen the pictures they had shown us in Rehab. They didn't really help me understand what the problem was so it healed superficially. It then it came back in 1998-99 after working for the Union which required long hours. And in March 2000, I was hospitalized at Kaiser after being admitted to the ER 3x and sent home twice to home health and high fevers until they finally diagnosed me with Osteomyelitis and MRSA and guaranteed me and then sent me to a nursing home, not able to get up for 2 months! What a nightmare, then after rehabbing I was OK. Then again in the fall of 2004 it started up again and in Jan 2005 I went to UC Davis and they debreeded it and sent me home w/IV antibiotics and 5 months in bed again but got up 2x a day. Then again at the beginning of 2008 I had a quick episode and I healed it over superficially. Then Nov 2009 it got bad again and I went to bed to home healthcare. By March I had willed it healed over and got up. Then a home health nurse had come and had refused to get it cultured she came for 8 weeks and kept saying "it smells bad" and "I said you should culture it" and she agreed but didn't do it!!! It healed over again and then in March 2011 I got a new chair and in the process of getting it adjusted--it was too tall, the foot rests were too long and my legs were not at 45 degree angles and I ended up staying up way too long--the sore erupted again! So I am now in bed again. Finally I have found a good home health nurse and she has set me up with a wound vac and I have been off it religiously about 21.5/7.